My story

I‘m 46 and first saw a doctor for fatigue at 17. I’ll try to summarize my situation here and then give you the long version.

Executive summary: I lived fairly normally with adjustments (stopped drinking alcohol, eating sugar, carbs, etc) for declining capabilities until about 12 years ago when I went into a tailspin in 2007 after moving to South Florida (2001). I made an emergency move to Colorado in 2007 and started feeling better quickly, but when I abruptly stop taking Ambien, my nervous system just fell apart. After a visit to the Mayo Clinic and five subsequent years of avoiding doctors and improving slowly, I discovered heavy metal toxicity was likely a key source of my troubles. I spent a year and a half doing Frequent Dose Chelation and full-spectrum methylation support which left me healthier in some ways and sicker in others.

My liver and detoxification genetics were probably the weak links in my body that allowed heavy metals and other toxins to accumulate. If that’s true, chelation likely overwhelmed my liver. So, I’m working on addressing my SOD2 flaws and restoring my liver, kidneys and colon. After seeing the big, gnarly stones, sludge and crud that out of my liver in my fourth flush, and the plaque that came off my colon, there’s no doubt left in my mind that I’m on the right track.

Here is the long version:  In 2007, I reached a crisis point and went to see the famous Dr. Galland in New York who did around $3,500 worth of blood tests which turned up a high mercury number on a plasma test (three times the normal high end range).

At the time, I was thinking mold allergy was at the root of my issues and he thought it was reasonable to pursue that angle first. He mentioned that he had patients with much higher mercury numbers with no symptoms. So I moved to Colorado to test the mold theory. It hasn’t entirely panned out.  Five years later, I’m a lot healthier (I was in a desperate slide earlier) but still feel like there are 80-year-olds with more energy and vitality than I have.

That’s changing, though, because in 2013, I finally discovered the root of 30 years of declining health and I expect to be back up near 100% by 2016.

Then and now my issues were/are in order with the most disruptive symptoms at the top:

  • Metabolic disruption leading to constant hunger
  • Metabolic disruption leading to difficulty falling asleep and staying asleep
  • Fatigue
  • Cognitive impairment / brainfog
  • Muscle tightness leading to tendinitis and repetitive strain injury
  • Temperature related itching which disrupts sleep
  • Exercise intolerance
  • Low blood pressure
  • Heat intolerance
  • Cold intolerance
  • Edema
  • Alcohol intolerance
  • Positional sleep apnea
  • Osteoporosis
  • Mold allergy
  • Mild chemical sensitivity
  • Mild anxiety
  • Emotional sensitivity
  • Ears ring when it’s too loud in the room
  • Mild tinnitus
  • Low body temperature
  • Low cholesterol
  • Low vitamin D & migraines from supplementation or sunshine
  • Light sensitivity
  • Dimmed vision
  • Omega-3 intolerance

Here’s what happened after arriving in Colorado — I felt remarkably better, so much so that I neglected to refill a prescription of Ambien I had been using for three months. That night, I experienced a nervous breakdown (which took me the next 4 years to overcome). In a panic, my wife escorted me to the Mayo Clinic where I was diagnosed with Chronic Fatigue Syndrome which I considered nearly useless. I was really fed up with doctors and decided to just focus on diet and exercise.

For many years, I had been under the assumption that I had Adrenal Insufficiency in spite of the Mayo Clinic doctors refusal to diagnose me as such. My symptoms are nearly a perfect match. So, I thought that perhaps I just needed rest, a good diet, gentle exercise and clean air and water. I thought maybe if I stopped using cortisol for a few years and went on a high-fat Paleolithic diet to build my cholesterol back up (which had dropped down to 99),  my adrenal glands would heal and I would recover naturally.

After a couple years of gorging myself on steak, pulled pork, shrimp, and chicken liver, I realized that my adrenal glands were not recovering. I started using cortisol again and currently take about 20 mg a day.

What didn’t quite fit the Adrenal Insufficiency theory is that supplementing got me functional, but never resolved a lot of issues. It just moved me from 20% functional to 60 or 70% functional.  I’ve read Dr. Jeffries Safe Uses of Cortisol several times and everywhere he talks about patients living their lives out happily after they start supplementing.  I never got enough mileage from cortisol to feel well more than a couple hours a day.

Recently, after watching the documentary “Forks over Knives” I went vegan. Having eaten a strictly whole food diet for many many years, with no alcohol, no caffeine, no sugar, no fruit and almost no carbs, I’ve come to the conclusion that neither adrenal supplementation nor diet alone will cure me no matter how many people have recovered from cancer using vegetables.

Finally, I turned my attention to heavy metal toxicity. I asked my Doc for a test and he gave me a challenge test kit which involved taking the chelator DMSA. Twenty minutes after taking the first 75 mg dose at breakfast time, I had an extremely rare clearing of brain fog (which did not last more than 45 minutes unfortunately) and felt unusually energetic all day.  Then I received the results and was convinced at first sight.

Later, I confirmed them with a hair test. When I’m not despairing about the length of the treatment, I’ve become so hopeful that I want to document my detoxification using Andy Cutler’s frequent dosing protocol. I also encouraged my parents to get hair tests and they look toxic as well, so it seems to run in the family.

My possible sources of mercury/metals exposure include:

  • Playing with Mercury in the house at least once as a kid.
  • Extensive vaccinations at a very young age.
  •  9 allergy shots weekly  for at least a year as a teenager.
  • Lots of vaccinations including hepatitis B in my early 20s.
  • Melting lead a handful of times to make weights.
  • Lots of fishing with lead weights / using my teeth to open them.
  • Having two tiny mercury fillings which were removed when I was a teenager.
  • Eating fish from contaminated lakes in Canada during the summers.
  • Eating tuna fish almost daily for many years as a young adult.
  • Eating salmon sushi regularly for a couple years.
  • Contrast agents ingested at least three times for CT and nuclear bone scans.

More important than the source of mercury is the idea that people who get sick typically do so with exposures to heavy metals that don’t bother others.  The theory behind this is that the ones who get sick have deficient internal detoxification mechanisms.  Put simply, the unlucky ones don’t eliminate mercury the same way most of the population does.

For example, the MTHFR genetic mutation prevents folic acid from converting to its active form which has a cascading effect on your health when your store of glutathione is eventually depleted.  It can run in families also which might explain why my father’s chronic health problems are similar in some ways to mine. The failure of your detoxification system is not just genetic however. It’s a multi-factorial condition which may involve high stress or emotional trauma, use of antibiotics, infections, and toxic exposures (of which I’ve had quite a few not listed here).

I’m not sure exactly what got me started on heavy metal toxicity after having neglected the idea for five years.  Maybe, I just reached a point where I’d exhausted so many other possibilities, there was nothing credible left. Part of the problem too for anyone suffering from something like what I’ve got, is that the cognitive impairment (poor memory and brain fog) is a significant obstacle to healing yourself.

Finally, we are too close to our problems  and can’t always see what’s right under our nose. When you have experienced brain fog for 20 years, and when it increases gradually, you tend to assume incorrectly that everyone sort of has it and can become complacent.  It’s especially easy to become complacent when your experience with MD’s tells you that wherever you go,  you’ll get a blood test and the doctor will say “Everything looks good!”

No matter that, 15 minutes of gentle walking incapacitates me for the rest of the day, that 20 minutes of sunshine can give me three days of migraines, that I’m unable to carry on a social life or provide and care for my family in any normal way. None of these mysteries ever seem to trouble my MDs much.

To be fair, a couple had various theories which we tested, but unfortunately they were the wrong theories and some of the therapeutic trials were very harmful including powerful antibiotics and industrial strength antiparasitics.

You might be wondering why I’m creating this website before I’ve recovered. It’s a good question! The answer is — I want badly to heal — and also to help others with what I’ve learned on my journey. This site will help me organize all the information and will be useful in the event that I do recover.   It would be impossible to document after the fact. I want to show the process as it really is and feels in the moment and not through rose-colored glasses after the fact.

1 year update: I‘ve completed a year of chelation now with 23 rounds and 97 chelation days under my belt and it’s time to review my progress. Big picture: chelation is a bitch as Val from FDC explains perfectly:

Mercury toxicity is like someone who has been hit with an arrow.   It caused damage going in, it is causing damage while it’s lodged in your body, and it causes damage when it is “yanked” out, so to speak.  Not until it’s removed, can your body truly heal.  Can you imagine healing with a big arrow stuck in your flesh?

and from Patrik Askert:

Chelation in general is a fine art, a balancing of releasing chelated toxin molecules into the blood stream, over and above what you liver normally has to deal with (in terms of digestive functions and breaking down toxins), and not releasing too many ‘new’ toxins into the blood in one go that the liver is not able to process comfortably in one go. Chelation, depending on how well the chelation agent ‘masks’ the toxin, is akin to a form of very mild but controlled poisoning, occurring over a prolonged period. When one takes too much chelant, then one is effectively ‘poisoning’ the whole body and it certainly feels like this.

2 year update: coming soon!

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221 comments…

  • avatar

    Mallory July 21, 2015, 9:47 pm

    HI, I have just finished reading your blog. You seem very organized about your health and doing everything right or possible to get better. Unfortunately it sounds like you have been through alot of doctors without huge improvements. I was in med school in Colorado doing amazing until I spent 1 week in the Hamptons. While visiting family in the Hamptons I had a tick bite, I did not get sick immediately it was slow progressive malaise or fatigue that happened over 1 year time. I became almost bedridden with horrible insomnia. 26 years old but on the inside I felt 90. Several negative lyme tests and worthless doctors with no answers. Finally found a lyme specialist who did the only correct lyme test out there Advanced labs and Igenex- I was very lyme positive. It took 4 years to get the proper diagnosis! I suffered on so many levels until I started lyme treatment. It feels like your going through life half alive when you have lyme. I was a med student, swimsuit model, engaged to a billionaire until I became sick. I lost everything important to me, it was beyond devastating. I have never responded to anyone on a blog but your symptoms point strongly to lyme. I am getting better with extensive treatment. You deserve to have tons of energy!! Mls

    Reply
    • avatar

      Eric July 22, 2015, 2:11 am

      Wow Malory, what a story! so sorry for your losses…

      What sorts of treatments have you had and what do you think helped you the most?

      thanks for writing!
      -Eric

      Reply
  • avatar

    jen June 20, 2015, 1:36 am

    hello
    i really appreciate this site
    i have been recovering from mould issues for almost two years.
    i have to wonder if some of it began from air drying clothing outside in humid North East Florida, wearing clothing that has mould…
    I have been working on something maybe you might have a suggestion
    I live in four seasons now in Ontario Canada and when it becomes humid, my ears seem to get affected. i alternate peroxide, and then a day or so later a drop of apple cider vinegar and alcohol. i have had black mould in one ear ten years ago from using excessive product plus a poor immune system. i was told to try to never get water in ears. anyways I just think my ears get so sensitive to weather and possible mould spores so what else can I try?
    thanks
    jen

    Reply
    • avatar

      Eric June 22, 2015, 2:07 pm

      Jen, I think the most important thing you can do is to move to a dry climate. The entire East Coast has fairly high mold levels. You might also try the internal food grade hydrogen peroxide therapy…

      Reply
  • avatar

    Paul June 11, 2015, 11:44 pm

    Hi

    The pics you posted concerning the stringy/algae things which you pass following enema are exactly the same as me. I believe they are advanced biofilms and I think they are sulfur reducing bacterias and archea andmethanogenic bacterias it is almost a symbiotic relationship between these pathogens.

    Do you have symptoms of bad breath and fecal body odor??

    Reply
    • avatar

      Eric June 22, 2015, 2:03 pm

      hi Paul, fortunately I haven’t had bad breath or body odor… that I know of lol.

      Reply
  • avatar

    Trini June 10, 2015, 7:45 pm

    Hi Eric
    Everything started us a “sinus infection” to numbness and bad migraine. After an MRI and blood test they only could say that my b12 level is very low. I got two shots and feeling worse everyday. I have pressure in my head and feel dizzy all day long. Low energy and other sympthoms.
    Doctor keeps saying that there’s nothing to do with migraines and low b12. My nutritionist wast the first person in give me answers and connect all sympthoms… And I ended up in this. Thank you so much.
    I’m trying a diet low in thiols and having supplements for digestion and energy.
    Besides the shots I got B12 supplement – “Pure encapsulations” b12 liquid, methylcobalamin 1000 mcg. I’m having it in the morning with my breakfast.
    I just need an advice of what supplement (kind and brand) should I get and dosage, Nobody can give me a right answer.

    Reply
    • avatar

      Eric June 22, 2015, 2:01 pm

      your symptoms after the B12 shots are consistent with the experience of most people who have B12 deficiency. I like the idea of using sublingual supplements at home because you get to control the amounts.

      Reply
  • avatar

    Merida May 29, 2015, 4:18 pm

    Eric,
    Thank you for your important information and insight. You have one symptom that might be an important clue: positional sleep apnea. Me,too. Plus, I have had a bunch of mercury filling. Yes, played with liquid mercury as a child in 1950s. Lived in Pittsburgh area – heavy industrial pollution.

    However, I was well and energetic until a neck/sacrum injury at age 49. – 1998. I have mild scoliosis – it runs in my family, as does all kinds of heart/ neurological/fatigue issues. I, too, have searched and searched. tried everything, ran large support group 13 years.

    I think that many of us have structural issues possibly related to scoliosis and the torque it is related to in the dural tube- with consequent blood-brain barrier weakness.

    My son has scoliosis ( now age 34) and some similar issues. He had a lab documented case of severe EBV at age 5. Many neuro problems afterward including sleep problems. His injury to the neck was at birth – delivered with suction.

    It is important to appreciate that the sacrum influences the neck and lower brain area. I have an abnormal CINE CSF flow study ( MRI), and also suspect vertebral artery syndrome. Check out the site: The Downside of Upright posture by Michael Flanagan, a neurological chiropractor.

    Thanks again! May we find the answers we are seeking. Interesting that this ‘scoliosis’ group also had wonderful gifts:)

    Reply
    • avatar

      Eric June 8, 2015, 8:16 am

      Thanks Merida, I get a lot of relief from lacrosse balls – check out massagetrack.com

      Reply
  • avatar

    Lori May 28, 2015, 2:16 pm

    Hey Eric, I was about to walk away from my computer, when I just felt the nudge to add this post. If it’s too much information… my feelings won’t be hurt. But it could also ring a bell for someone.

    This year while trying to get to the bottom of my own myriad symptoms, I agreed to see a regular allopathic bone doc. After the first round of lab tests he said “You could have a parathyroid tumor.” What? We are continuing to monitor me, because it can be difficult to catch on a first lab. But what struck me is that, whatever brand of doc you go to, may never have heard of anything but their own specialty. If they’ve spent years studying MHFR and methylation, they may be a deer in the headlights when you bring up hormones or parathyroid glands. Too bad we have to do our own sleuthing.

    http://www.parathyroid.com/parathyroid-symptoms.htm

    I have personally talked with some of the folks who had this simple 20 minute surgery, and they immediately and permanently felt well. They got their life back, after sometimes decades of illness. You kind of have to wonder when it takes buckets of supplements and very difficult and/or esoteric therapies to just tread water… whether you may have missed something simple. It’s worth a look.

    Reply
    • avatar

      Eric June 8, 2015, 8:12 am

      A good thought Lori, I did have them imaged and they’re good:)
      -e

      Reply
  • avatar

    Lori May 28, 2015, 1:18 pm

    Hi Eric, How generous of you to be journaling while you are still trying to find your answers. I hope that you are feeling better all the way (although I know how easy it is to say, how hard to do). Sounds like we are all in the midst of trying to find our answers… while not going off the rails. I happen to love Ayurveda, and that is core for me. But it doesn’t cover some of the modern day stuff I’m encountering. So, my challenge is not to get hooked into fads… (for me, Lyme diagnosis makes me run for cover since a “good Lyme doctor” will find it in 80% of the people who walk through his door… I know, one of my docs is LL and I’ve asked him what percent he treats for Lyme). The hardest part of all this is just keeping your balance in the midst of so many theories. Stay joyful, Eric… you sound like a joyful guy with a great sense of humor. Bet you’ve needed it!

    When I read your long list of symptoms, my first thought was that it sounds like you may have low testosterone. I dont know if you’ve checked that out. Can I throw my few healing strategies into the mixs, as well? As I am approaching the sixth year of my own implosion, a few things I heard from my doctors are “keepers”: 1) I finally agreed to take gluten completely out of my diet (not just 99% but 1000%)… even though I did not test positive for celIac, Rapid osteoporosis, calcium loss, iron loss, and all the GI issues I was having, along with autoimmune issues (and issues with Vitamin D!) caused my docs to say let’s not mess around with this. Get it out of your diet. I had lost 30 pounds last year, unaccountably… and I have regained all that weight and some strength since eliminating gluten and most other grains completely. 2) I am supplementing with transdermal hormones including testosterone (very small dose but man it makes a difference), estradiol, etc. My doc is a male, and HE uses all of these. I was also open to HGH… but that comes after you get all the others worked out. They would have to pry my hormones out of my cold dead hands… they’re that important to me. There are several good/easy books on hormones, which includes those for men. 3) Salt (more of it). 4) Iron (lots more of it… I don’t know why. Doctors tend to overlook Ferritin levels, and in men it’s usually fine. But if a ferritin level drops below 50, you WILL be exhausted, depressed, and eventually, unable to do anything. Immunity, etc just goes to hell. For some reason “functional medicine” docs do not look at iron… even if it’s just blatantly in their face. This is one thing I’ve had to tackle on my own, even doing my own frequent labs. One way ferritin levels can drop is by taking zinc, since those minerals are oppositional. I was also surprised to find that my copper levels were extremely low… and in women, copper is usually high. I had to greatly reduce my daily zinc to 7 mg for a good long time, so my iron levels could have a fighting chance. (Now I wish I had labeled that #1… it’s that important). I am back at the gym, and my ability to exercise is directly proportional to the amount of iron I have taken. 5) I did not want to get too woo-woo and go into really weird stuff, but I have had to wonder about EMF’s. (and for you, the fact that Colorado improved things for you a bit… might be a factor for you, too?) I thought I’d give it a go, started throwing my circuit breakers to my bedroom and surrounding rooms every night. Wow. An immediate change in my sleep… sound, sweet sleep without waking up a single time. I don’t know if this is forever, but maybe when everything is delicate and in the process of healing, it’s a good idea to get rid of as much radiation and electrical noise as possible. I hate to admit it… it’s made a huge difference. I’ll be camping in Santa Cruz tonight, for that very reason; I’ve noticed that sleeping outdoors, on the ground, just revives and energizes me like nothing else.
    I’ve known people who just head out for a forest and stay there for a week or a month, where they do nothing special but just “be” and soak up the no-EMF clean air and sit in a creek. And laugh. And come home whole. Food for thought.
    I, too, am doing cleanses and considering a liver flush, but I want to make sure that it’s not too depleting. In Ayurveda that’s the first rule…. no point in draining the small life force you have. Coffee enemas used to make me feel great. Now they put me to bed for days. I also had large exposure to mercury 30 years ago… wound up in Psych hospital for 3 months. Figured it out… two horrible years of detoxing.
    Maybe it’s “e”… all of the above. If anything I have said sounds interesting to you… feel free to email or contact me. I’ll be praying for all of us!

    Reply
    • avatar

      Eric June 8, 2015, 8:10 am

      Lots of good stuff here Lori, thanks!! Clever trick with the circuit breakers, I should try that for sure.

      I quit gluten too ages ago:)

      Will try to have ferritin checked next time – I took a lot of zinc.

      warmly,
      eric

      Reply
  • avatar

    Paul May 22, 2015, 9:05 pm

    Hi Eric,

    I just found your website and have been reading it for the last hour or two. I love the fact that you’re documenting your journey while still in the midst of it. Very helpful! I’ve thought of doing the same myself but haven’t yet begun to do so. I’m glad to see someone doing it! Thank you.

    Question for you: do you work with practitioners on all these therapies and protocols you’re doing? I’m considering working with Dr. Dan Kalish on my adrenal fatigue and balancing my neurotransmitters, or with Dr. Jess Armine for the methylation and neurotransmitter side of things. I can see that you’ve experienced a lot of frustration (as I have too!) with docs who tell you you should be fine according to the blood work, but I’m curious if there are any docs that you have found helpful in your path to healing.

    Thanks,
    Paul

    Reply
    • avatar

      Eric May 24, 2015, 2:56 pm

      hey Paul, I haven’t found any doctors or practitioners that could really lead the way for me – the ones that come very highly recommended often have weight lists of two years or more and cost a fortune. Having had so many bad experiences in the past, it’s a big hurdle for me to pin my hopes on one guy. My health issues are like a full-time job so I also get skeptical every time I think about the likelihood that any practitioner could be of great help with just the couple hours that I could afford… I’ve been thinking about writing a post about doctors for a long long long time.

      I wonder if I’ve made a mistake by doing this on my own but my best guess is that I am slowly getting closer and closer to the causes and recovery.

      Reply
      • avatar

        Per Berntsen June 1, 2015, 8:47 pm

        Hi Eric,
        I have been reading a lot of your material. I am particularly interested if it is safe to take b12 injections while doing chelation therapy. It is 5mg/ml in 2 ml intramuscular injections of methylcobalamine. I take it every 6 weeks.

        Per

        Reply
        • avatar

          Eric June 8, 2015, 8:25 am

          Per, I much prefer daily sublingual mb12 – i think you have better control and it should be smoother. It’s recommended by Dr. Cutler during chelation too.

          Reply
          • avatar

            Deanna Asencio July 16, 2015, 4:29 pm

            Eric, I was directed to your website today by someone in a reply to a Dr. Mercola post. Thank you for all this terrific documentation! I too recently found out that I had a genetic mutation on the MTHFR gene and don’t methylate B. My energy is pretty good, but as a mom, homeschooler, and business owner (I own a colonic practice), I could use more some days. As long as the B is methocobalamine (sp?) its ok? I eat very clean (most days!), gluten free, I employ intermittent fasting, juicing and follow an O blood type diet, but cannot take a multi, as they all have folic acid and that’s obviously poison to my system. I crave sugar like a mad-man and I believe that’s my body screaming for energy. I would like to supplement with additional B, just asking about the type/dosage. thanks!

            Reply
            • avatar

              Eric July 18, 2015, 2:59 pm

              yes, you want methylcobalamin and methylfolate. try taking them together… start low and increase over a few weeks.

              Reply
    • avatar

      Steve May 26, 2015, 12:03 pm

      Paul,
      I follow this site as I too find it of interest.

      I”m curious – how did you find the two doctors you reference, Dr. Dan Kalish and Dr. Jess Armine? I find it really odd that neither has a MS, both have their doctoral degrees in Chiropractics.

      I always tend to question these things now as I am a bit skeptical of a lot of doctors these days. And I ask because I am trying to find someone good in genetics as well, and I realize this is all cutting edge that many are just getting started in it.

      I found a site that appears to be interesting, http://www.healthcoach7.com. It’s interesting in that it takes 23andme results and promotes itself as ” Empower your life with the knowledge of your genetic code and set the course towards greater health and a longer life. Receive a report of your results, team up with our health coaches and learn how to harness the power of your genes to move more quickly towards your goals.” I did a search on the primary doctor, Dr. John Catanzaro, and found that he had his license taken away for a year for “experimenting” on his patients (http://www.king5.com/story/news/local/2014/12/03/dr-john-catanzaro-suspended-will-return/19871277/) That said, he has 57 outstanding ratings on http://www.RateMDs.comhttps://www.ratemds.com/doctor-ratings/113349/Dr-John%2BA.-Catanzaro-MTLK%2BTERRACE-WA.html

      I could not find Dr. Kalish on RateMDs.com, but I did find Jess Armine: https://www.ratemds.com/doctor-ratings/2404575/Dr-JESS%2BP.-ARMINE-Havertown-PA.html

      Reply
  • avatar

    Alex April 19, 2015, 11:39 pm

    Hey Eric,

    I too had a very high load of heavy metals, mainly from my mom and from having mercury fillings for several years.

    I to have seen tremendous improvements with a program very similar to the QuickSilver Scientific protocol. I started almost 2 years ago and I’m a million times better now without having to taking any IV’s or pharmaceutical chelators like DMSA. I took liposomal glutathione, liposomal R-ALA, MSM in very high doses, NAC, zinc, selenium, zeolite, the IMD by quicksilver scientific, and liposomal EDTA by quicksilver scientific, and those were the most helpful to me. I took them with niacin (vitamin b3) and feel like that hugely amplified the detoxification effects. I also supplemented with topical magnesium regularly and feel that helped with my detox as well.

    Another thing that I found to help during detox was having a zero sugar diet (as I also had candida and parasites) and eating large amounts of garlic and high sulfur foods along with supplementing with molybdenum as it can help with the sulfur metabolism especially for people who can’t tolerate sulfur.

    I wrote about my experience in great detail here on my blog: http://thesupermandiet.com/detox I’d be happy to share more details with anyone

    Reply
    • avatar

      Eric May 5, 2015, 4:39 pm

      congratulations Alex, I’m very envious! I look forward to reading your blog.

      how much MSM did you take and why? I also find zero sugar very helpful…

      Reply
      • avatar

        Alex May 6, 2015, 10:38 am

        Thanks Eric. I took a lot of MSM, at least 3 tablespoons a day or more, and it really helps. MSM is a very powerful liver methylator and has helped me with digesting fats more than anything else (more than enzymes, probiotics, herbs, etc.). It contains very high amounts of sulfur which can help in boosting glutathione levels. Sulfur is also antagonistic to mercury. If you take it in such large doses you will feel a very strong detox effect from it almost instantly.

        The only MSM I would recommend is the plant-based MSM which is called OptiMSM. The brands I had great results with are Bluebonnet Nutrition and SunFood and as far as I know they are some of the only ones that have plant-based MSM in powder form which is better if you will be taking the large doses needed for detoxification.

        MSM is also recommended for cancer treatment in similar large doses, more information can be found on the cancertutor site here: http://www.cancertutor.com/faq_msm/

        Reply
        • avatar

          Eric May 6, 2015, 10:02 pm

          very interesting Alex!! I put that on my ‘to try’ list – I’ve been using DMSO which is MSM’s kissing cousin and have found it remarkably effective at reducing inflammation and fighting migraines… Thank you:)

          Reply
  • avatar

    Attila April 9, 2015, 8:28 pm

    Hi Eric!
    I will start my 17th round on ALA 3mg, but l started to have some kind of allergical reactions to everything l eat. Red-hot-dry face, dry eyes, feeling so depressed. I just eat chicken dark meat, rice, potato, cucumber, zuccini, salad. Is this normal n this stage? And heat intolerance as well.
    Thanks

    Reply
    • avatar

      Eric April 10, 2015, 3:21 pm

      I’m not an expert – would definitely recommend you join the Yahoo group for frequent dose chelation and ask there!

      Reply
  • avatar

    simon March 30, 2015, 12:59 am

    2008 I had a lot of dental work done,2010 a lot of weird stuff, GP said it was mini strokes, was good for a couple of years.
    Back to the dentist because the composits fillings were junk, the mercury was put back in, my biggest mistake ever. All the weird stuff came back, the mercury thing was bugging me but the doctor had me convinced it was mini strokes, but with 3 MRI’s there was only one sign of a possible mini stroke. After a lot of internet hours I now know it’s heavy metal poisoning, I had the mercury fillings removed by a competent dentist at a substantial cost. I’m going to do the Andy Cutler protocol, the DMSA is on order. I was wondering what you think of using Modified citrus pectin

    Reply
    • avatar

      Eric March 30, 2015, 4:36 pm

      Simon, I bought modified citrus pectin once and took it for a week or so but never felt anything one way or another. I tend to go in for more intense therapies for whatever reason. I guess because I’m in a big rush to get healthy and recover my life! Sorry to read about your horrendous experience and wish you lots of luck..

      Reply
  • avatar

    Jim Mulderij March 25, 2015, 1:51 pm

    Hi Eric,

    Is there a way to send you a pm for some advice?

    Reply
    • avatar

      Eric March 25, 2015, 1:56 pm

      sorry Jim, there isn’t… Leaving comments here is the best way.

      Reply
  • avatar

    TSpar March 1, 2015, 5:28 am

    Hi Eric,

    I just found your site and am completely overwhelmed. My 14 year old daughter started having joint pain about 4 years ago. Knowing traditional medicine was not the route I wanted to go, I began my own research. We went through a million possible diagnosis, starting with lyme disease and ending with leaky gut, with a million things in between. After seeing multiple NDs and eliminating a zillion foods from her diet (nightshades, gluten, dairy, eggs, etc.), we did the 23andMe test at our current NDs request. She has my daughter on a lot of supplementation, most of it is listed on your crazy long list! :-) And she is a lot better – joint pain gone. But she still has a lot of health issues, the primary one being insomnia.

    So my question is, where can I start to understand this whole geneetic SNP methylation thing? Every site I visit feels like I’m jumping in right in the middle of a advanced course. Is there an “understanding genetics/methylation/SNPs for DUMMIES?” website? :-)

    Thanks,
    TSpar

    Reply
    • avatar

      Eric March 1, 2015, 4:54 pm

      Congratulations on making a lot of good moves and helping her daughter with her joint pain! I don’t know of any really easy to read content on genetics… Sorry, I know it feels overwhelming at first. Just go slow and bite off one little piece at a time.

      Reply
      • avatar

        Steve W April 1, 2015, 5:34 pm

        TSpar, Eric,

        TSpar is looking for a good “genetics for dummies” reference. I won’t say it is a “for dummies” version, but Dr. Amy Yasko is a pioneer in this field, and has some excellent resources on her website. You can read an excerpt from her book here: http://www.holisticheal.com/media/Excerpt_from_Dr_Amys_Latest_Book.pdf

        She defines Nutrigenomics as “The study of how different nutrients may interact with specific genes to alter the risk of health issues.”

        This is what I ordered: http://www.holisticheal.com/yasko-protocol-starter-packet.html

        And this is her primary website: http://www.dramyyasko.com

        You might also find this free download of interest: http://www.autismnti.com/images/Website-_Yasko_Education.pdf

        Good luck to you both!

        PS – I am heterozygous for MTHFR C677T, which started my interest in all of this. I have since learned I have quite a few other genetic SNPs by getting the test from 23andme, downloading the raw data, and then uploading it to Livewello and a few other sites. Amazing what is available now.

        Reply
        • avatar

          Eric April 2, 2015, 12:40 am

          Thanks Steve, the genetic analysis is a real gift!! Good luck to you:)

          Reply
  • avatar

    Cathy February 17, 2015, 10:28 am

    I have had fibromyalgia for 19 years. It started in earnest after agrichemical exposure. During some of that time I’ve had fatigue so debilitating that I wanted to die. I’m still tired. Oh so tired but life is livable now, due to diet changes. I want to look into methylation. Once some years ago I went on a special diet of meat vegatables and fermented rice bread. I took a bucket load of supplements.I felt totally amazing. Incredible. My pain was drastically redused and I only needed 5 hours sleep. I now self treat for pyrolle disorder. Can’t live without 800mg day of magnesium. I have tried to duplicate my results from when I felt amazing but it is never quite the same. I have never quite been able to. I couldn’t work it out untill reading some stuff you wrote about b12 and brands. I was taking a small dose of sublingual methyl b12 drops. A particular highly reputable brand in my country. I’ve tried methyl folate and felt no difference. Possibly more wired. My B12 blood levels are high. Where on earth do I start? What do I do. I’ve read in some places that some people believe all fibro patients have methylation issues. Can you point me in the right direction? I’ve screwed my health up before by trying to figure stuff myself. I went vegan and ended up in a psyche ward for 4 months!! I’ve spent thousands on practitioners who swear they can heal me and find out they can’t. I can’t wasit any more money. I don’t have it. I once had a b12 shot when I was very sick. Don’t know what form of b12 it was but I have never had anything worse happen to me in my whole entire life. It was horrendous. I felt so wired I wanted to die. I couldn’t keep still. I had to jerk and move my body. I was running on the spot for hours. I would have literally thrown myself under a bus to stop the sensation of physical anxiety if people hadn’t have saved me and drugged me up……so I wonder if that had something to do with methylation issues? Better stop going on now. I just need to know where to start and what to do about all this fibro/fatigue business. Thanks if you can help me.

    Reply
    • avatar

      Eric February 21, 2015, 4:16 pm

      hi Cathy, there are lots and lots of clues that methylation is a huge central issue for you. Have you read this: http://howirecovered.com/active-b12-therapy-faq/ ? I know it’s long, but I would read that first. Pay particular attention to this – http://howirecovered.com/active-b12-therapy-faq/#starting-low

      A good first step is to get accustomed to taking a very small amount of adb12…

      Reply
    • avatar

      tj April 5, 2015, 2:43 pm

      Sounds like copper toxicity to me which means your most likely low in zinc so the pyroluria treatment is probably a good idea. Have you ever been tested for Lyme?

      Reply
      • avatar

        Eric April 5, 2015, 3:09 pm

        thanks TJ. I’m already taking 180 mg per day of zinc and 300 mg of B6:) I was tested for Lyme and it was negative…

        Reply
  • avatar

    qstroman February 16, 2015, 8:10 pm

    I just wanted to say that most people should not freak out too much about heavy metals they are a normal part of life.

    Some people have a severe negative reaction from low levels of heavy metals in their body. I am in no way denying this fact. Keep this in mind when I say that if your heavy metal test shows your levels are 2 – 3 times higher then the reference amount don’t freak out, usually this doesn’t mean anything and your body will excrete these heavy metals naturally in time via sweat, hair, urine and faeces. Most people will not be negatively affected by this small amount. Please people try to remain calm and rational about this if your levels are like this.

    If you seeing levels 100 x higher then it is worth further investigation and it may be a concern. If you seeing levels 1000 x higher then you can start freaking out because it is very likely you have a problem. What I am saying is that where as some people are affected by a very small amount of heavy metals most people are not and if your level is 2-3 times higher it usually is no reason for concern and usually has very little impact on your health. So your level is higher so what? What does that actually mean? So you get your results and see that your levels is higher than the reference level and freak out and think that this means it is really bad and that you have lead, mercury poisoning and it is the reason for all your health issues. Wait, stop and listen what it actually means is that you that you have more lead, mercury than other people in the reference area. The reference amount differs from lab to lab but what is usually means is how much lead, mercury is commonly found on average in other people within the geographical location of the testing lab.

    Please be aware that no person is without some level of toxic metals in their bodies, circulating and accumulating. Heavy metals exposure can come from acute contact with a heavy metal or it can come from chronic low dose contact. The metabolism and excretion of toxic elements occurs continually within the body and is a normal process.

    Reply
    • avatar

      Eric February 21, 2015, 3:49 pm

      well first, I should agree with you that nobody should freak out about anything ever. And it’s also true that someone with high levels of mercury or other heavy metals shouldn’t freak out either if they’re in good health. What they should do is understand that over time, maybe 30 or 50 years, that heavy metal burden may translate into Parkinson’s, Alzheimer’s, rheumatoid arthritis or some other very nasty illness doctors will say has no known cause or cure. And of course it goes without saying that someone with high levels of heavy metals who is ill has something very serious to think about.

      Reply
  • avatar

    Carrie February 8, 2015, 4:21 am

    I have been doing Quicksilver Scientific’s detox protocol for the last three months. It is working, but it can be hard at times. I have more energy than when I first started the detox, and I am mercury toxic. I’m also just down the road from their lab. My husband also did their mercury test, and he is low in mercury, even though he had way more mercury in his mouth for longer than I did! I’m just learning about methylation. I have a number of methylation defects, including COMT, MAO A, and MTRR, as well as heterozygous for MTHFR. I’d love to share info with you off-line.

    Reply
    • avatar

      Eric February 9, 2015, 3:47 pm

      hi Carrie, I’d love to connect with you! I’m super interested in hearing your experience with Quicksilver:)

      Reply
  • avatar

    Nicole January 24, 2015, 9:19 pm

    I think muscle testing (autonomic response testing) was the most helpful for me. It can tell which supplements are most beneficial for your body. It may also be able to tell if you have viruses, parasites, ect.

    Reply
    • avatar

      Eric January 24, 2015, 11:09 pm

      thanks Nicole, I would like to try it someday!

      Reply
    • avatar

      John January 26, 2015, 2:29 pm

      I have tried the autonomic response testing as well and this stuff works. I’m still working with my integrated doctor and he’s specialized with autonomic response testing, treatment for bacteria, viruses, fungus and environmental toxins.

      I can see total improvement overall, but my digestive system is still not functioning effectively and normal. I’m wondering if anyone got their digestive system back to normal during or after chelation therapy completion?

      Reply
      • avatar

        Austin March 28, 2015, 12:06 am

        Have you looked into FMT (fecal microbiota transplant).?

        Reply
        • avatar

          Eric March 30, 2015, 4:32 pm

          I haven’t and don’t think I will need to because I’m making such good progress with oxygen therapies. I also believe that I respond well to probiotics – just tried the AOR probiotic-3 too and believe it’s very targeted to my needs. Thanks for the suggestion Austin!

          Reply
  • avatar

    Jon McCormick January 24, 2015, 8:15 am

    -Eric: I would like you to look into Lysine Protein Intolerance. This is a genetic issue where the person has poor ability to break down lysine (amino acid) and this puts tremendous strain on the liver. People with this issue also produce excessive surfactant in the lungs (mucus etc).

    If you eat a large piece of meat (high lysine)? ==> does it literally put you to sleep in 1-2 hrs?

    Reply
    • avatar

      Eric January 24, 2015, 4:09 pm

      thanks Jon, but I’ve always felt better when I eat high-protein high-fat. Carbohydrates and fat are the only thing that relax me. Nothing really puts me to sleep except for a large meal, definitely not steak.

      Reply
  • avatar

    Kiki Kish January 14, 2015, 1:00 pm

    ALA is on the list of sulfur supplement no no’s. FYI.

    Reply
    • avatar

      Eric January 14, 2015, 3:43 pm

      Thanks Kiki – that’s actually why I started experimenting with the no sulfur diet, to counter the increase in sulfur I was getting from chelators:)

      Reply
  • avatar

    Nicole January 5, 2015, 4:48 pm

    Hi, I had some similar symptoms and was finally diagnosed with chronic Lyme. The fatigue may have been an underlying thyroid issue, then if you had any GI issues that could result in trouble detoxing your body. Mold weakens the immune system making it difficult to fight infections. Then a tick bite could cause devastating Lyme disease in a weakened immune system. Many people with “chronic” Lyme have heavy metal poisoning and mycotoxins
    I would suggest seeing a Lyme literate doctor- go to iliads to find an MD. Testing for Lyme is inaccurate. Igenix is the best test as the western blot and Elisa can have false negatives. This is what happened to me and I’m now getting much better. Good luck!

    Reply
    • avatar

      Eric January 5, 2015, 7:14 pm

      Thanks Nicole, which treatments have helped you the most in fighting Lyme?

      Reply
  • avatar

    J January 1, 2015, 9:42 am

    Quiksilver/Shade. Yes, you’re right — sorry I had the first name wrong. I agree with you. I was thinking along the same lines. Correct, there’s a lot of investigating that is necessary when it comes to those who profit from illness.

    Oxygen. I’ve felt starved for oxygen since I’ve been sick. The supplemental oxygen helps. I have a much clearer head after breathing it and I feel more energy. I did standard tanks for old people. The tanks were little smaller than scuba tank size (2,000 lbs.) with wheels. I did about 500 – 1,000 lbs. per day.

    Hyperbariacs. This is something I’ve been wanting to try. I’ve heard a lot of good things about it from those of us exposed to mold.

    Ozone. Another thing I was considering but haven’t researched enough yet to know. Still checking it out.

    Food Grade H2o2. This is something that I started taking internally in October for the mold symptoms…made it to 8 drops 3 x per day and stopped because I felt so bad. Started again in November and pushed through all the way to 25 drops 3 x per day. Now I’m at 25 drops 2 x per day. I also nebulized it. Again, I believe it helped a lot with mold symptoms but not for the mercury. I’ve have to carefully balance/space out the Oxidative therapy and the Anti-Oxidant Detox.

    Allergy Shots. I’ve had a lot of allergy shots. Starting when I was about 6 through 14 at least twice per week. I’m looking for more information to see if this contributed to my mercury levels.

    Glad you found a good location. I believe it’s more important than most people realize in recovery.

    Thank you for all the helpful info!

    Reply
    • avatar

      Eric January 3, 2015, 4:29 pm

      Your experience with oxygen is really interesting – something I should try next time I’m at my mom’s place because she uses bottled oxygen! Sounds like you had even more allergy shots than I did…

      Reply

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"...nothing ever goes away
until it has taught us
what we need to know.
"

-Pema Chodron

About


My name is Eric - I‘m 46 and saw a doctor for fatigue at 17. I lived fairly normally if a little subdued by lack of endurance at times. But then, 12 years ago I fell into a nosedive after moving to South Florida. Now, I know heavy metal toxicity is a significant source of my troubles along with genetic methylation cycle dysfunction. I spent 18 months chelating the metals out and starting up methylation but stopped when I felt myself circling the drain. Currently doing liver, colon, kidney and parasite cleanses. More about me here.

Timeline and current dosing:

Rounds completed: 28
Total chelation days: 113
Dose: 25 mg DMSA and 25 mg ALA every 3 hrs

* supplements
* hair test
* genetics
* lessons learned

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